Thorny
topic of how to deliver bad news explored in pediatric grand
rounds
By KRISTA CONGER
What's the best way to deliver bad medical news to adolescents
and their parents? For openers, don't shirk the truth but allow
room for the power of hope. Don't underestimate the capacity of
adolescents to grasp complex medical information and to assess
their options. Finally, cultivate empathy and compassion for the
patient and family as a way to support them and reduce the risk of
your own burnout.
These are some of the answers offered by Edwin Forman, MD, in the
ninth annual Rudene Marie Di Carlo Lectureship during a recent
pediatric grand rounds talk.
"Thinking through tears is a very important ability of caretakers,"
said Forman, professor of pediatrics at Brown University Medical
School and associate physician-in-chief and director of pediatric
hematology/oncology at the Hasbro Children's Hospital in
Providence, RI. "Empathy can prevent burnout caused by the
psychological energy used in trying to believe that there are those
to whom bad things happen. And then there's us -- who try to help
but don't experience bad things," said Forman, who received the
2003 Rhode Island Hospital Outstanding Physician of the Year Award.
"I gain support from the families that I treat, which is why I am
still in this field."
Through it all, Forman emphasized the importance of maintaining
honesty while cultivating hope. "We must balance that hope with our
knowledge of the course of the disease," said Forman. "The loss of
hope can be survivable if diversified, that is, it may be possible
to replace one hope with another. Rather than focusing only on one
marker of success -- whether or not the patient survives -- another
goal can be maintaining dignity while alive. The most important
thing is that we use all our powers to achieve the best end for the
patient."
Rudene Di Carlo, MD, would likely have agreed. Di Carlo was a
pediatric resident at Lucile Packard Children's Hospital from 1991
until her death from chronic myelogenous leukemia in 1995. She
recorded a video a few weeks before her death describing the
lessons she learned as a patient. They included simple ways for
physicians to connect with patients by touching them and spending
time with them. Reliability when making promises and involving the
patient in the decision-making process is also important, as is
consideration for the family at all times.
Forman recommended the following articles and books on
the subject:
• Four models of the physician-patient relationship" E. J.
Emanuel; L. L. Emanuel Journal of the American Medical
Association 1992; 267:2221-2226.
• "The Healer's Power" Howard Brody, MD, Yale University
Press
• 'Dying words' Jerome Groopman, MD, Annals of Medicine New
Yorker Magazine Oct. 28, 2002 (http://www.newyorker.com/fact/content/?021028fa_fact)
• "The Anatomy of Hope: How People Prevail in the Face of
Illness" Jerome Groopman, MD, Random House
• "Are there good ways to give bad news?" G. L. Krahn; A.
Hallum; and C. Kime. Pediatrics 1993; 91(3): 578-582
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